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CNN reporter Andrew Kaczynski’s toddler daughter died of a uncommon mind most cancers. Right here’s how he’s making an attempt to enhance the percentages for different households.

CNN journalist Andrew Kaczynski and his spouse Rachel Louise Ensign, a Wall Avenue Journal reporter, have confronted the unimaginable as dad and mom. Their child Francesca, whom they lovingly name Beans, was recognized with an “extraordinarily uncommon and really aggressive rhabdoid mind tumor,” generally known as an atypical teratoid rhabdoid tumor (or ATRT), in September 2020. ATRT represents just one to 2 % of childhood mind tumors and often seems by 3 years outdated, in response to the Dana-Farber Most cancers Institute. Their daughter’s “stunning” prognosis launched Kaczynski and Ensign into the world of uncommon pediatric cancers. “Our daughter was completely nice, completely regular,” Kaczynski tells Yahoo Life. “Sooner or later, her eyes weren’t focusing and he or she was vomiting and could not cease. So we took her to the ER they usually did a scan they usually stated, ‘There is a mass in your daughter’s mind.” After receiving the devastating prognosis, Kaczynski and Ensign knew they’d no time to waste. “You actually simply have to leap proper into it,” he says, from investigating hospitals focusing on treating their daughter’s uncommon pediatric most cancers to gathering and sending out medical data and making appointments for consultations — all whereas figuring out the clock is ticking down. “You must do that all inside every week as a result of… you are coping with these uncommon and aggressive mind cancers,” he says. “You must work out a remedy plan simply due to how rapidly these kinds of tumors are rising.” Whereas caught up on this whirlwind, “you nearly haven’t got time to even course of it,” Kaczynski says. “You go from having a superbly wholesome, comfortable youngster to having to just accept the truth that your youngster would possibly die.”